News

  • Eye health services failing people with glaucoma

    The International Glaucoma Association response to the

    All Party Parliamentary Group on Eye Health and Visual Impairment Report

    See the light: Improving capacity in NHS eye care in England

    The International Glaucoma Association (IGA) welcomes the APPG Eye Health and Visual Impairment review. Patients with glaucoma have been badly let down by lack of financial investment, poor policy decisions and chaotic communication and administration systems.

    The report highlights the need for the forthcoming NHS Tariff review to redress the financial imbalance between first and follow up appointments. Glaucoma is a lifelong condition and we want to see a system where people with glaucoma are fairly treated and feel supported and cared for throughout life and not just at the point of diagnosis.

    Our research shows that over 40 per cent of members have been adversely affected by cancellations or delays to follow up. Members call us distressed, anxious and scared about the impact that the delay will have on their sight. Only the confident and persistent are able to navigate through a dysfunctional system.

    We have had members who have paid for private healthcare in order to avoid delays. The creation of a two tier health system is unacceptable and against the founding principles of the NHS.

    The report is clear and confident in the recommendations for financial investment, revised pricing structure, increased recruitment and the need for joined up electronic patient records. We look forward to the Government response.

    The IGA is the charity for people with glaucoma. Established over 40 years ago, it raises awareness, promotes research related to early diagnosis and treatment, and provides support to patients and all those who care for them. In addition it also part funds the IGA Professor Ophthalmology for Glaucoma and Allied Studies, Professor David Garway-Heath, at UCL and Moorfields Eye Hospital, London. Other services include a helpline, patient information, patient support groups, events for professionals and patients, as well as providing grants for research funding. It is run by a board of trustees which represents ophthalmologists, optometrists, ophthalmic nurses and people with glaucoma.

    To read the report, click here.

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  • Joint IGA and Fight for Sight Research grant

    A new small grant is available, jointly funded by the International Glaucoma Association and Fight for Sight. For further details please see   https://www.fightforsight.org.uk/apply-for-funding/funding-opportunities/small-grant-awards-schemes/

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  • A focus on dry eye and glaucoma for National Glaucoma Awareness Week

    Teary-eyed?

    The impact of dry eye on people with glaucoma

    #GetEyeWise

    The International Glaucoma Association is focusing on the impact of dry eye syndrome for people with glaucoma during IGA National Glaucoma Week - 4 to 10 June 2018. Dry eye can have a debilitating effect on a person’s quality of life yet is little understood.

    Dry eye syndrome affects 50 to 60 per cent of people with glaucoma and one in three people over the age of 65. It is a disorder where the eyes don’t make enough tears, or the tears evaporate too quickly. This can make eyes feel dry, scratchy and irritated or watery, and feel heavy and tired by the end of the day. In severe cases people report pain, discomfort and depression, and its impact has been compared with that of angina, dialysis and disabling hip fractures.

    Commenting on the campaign, Karen Osborn says: “Dry eye has an adverse impact on quality of life, with people saying that they cannot read, find the sunlight painful, feel unhappy and can’t even open their eyes long enough to do certain daily tasks.”

    “We want to encourage anyone who has aggravating dry eye symptoms to seek the advice of their optometrist, pharmacist or GP and it is important that people with glaucoma raise any dry eye symptoms with their ophthalmologist as a change of glaucoma treatment to a preservative free eye drop often helps to reduce the symptoms of dry eye syndrome”.

    Glaucoma affects around 700,000 people in the UK and the majority of people will initially be treated with medical eye drops. Managing both dry eye and glaucoma effectively is important, but challenging. Both conditions are long-term but manageable.

    What are the most common symptoms of dry eye?

    Heavy tired feeling of the eyes

    Difficulty reading or working on the computer

    Blurriness of vision

    Excessive watering of the eyes

    Discomfort when wearing contact lenses

    Stinging or burning of the eyes

    A sandy or gritty feeling in the eyes

    Pain and redness of the eyes

     

    Tips to help

    Drink lots of water which helps tear production

    Get enough sleep

    Avoid alcohol and spicy foods

    Avoid smoking and smoky areas

    Wear glasses or sunglasses on windy days

    Avoid air-conditioned environments and draughts

    Consider using a humidifier

    Blink more frequently when using a computer screen or reading

    Look away from computer screens every 30 minutes

     

     

    Our leaflet contains lots more information:

    Free Dry Eye Syndrome leaflet

     

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  • URGENT: Invite your MP to important eye care event 6 June

    Act now to stop people losing sight due to delayed and cancelled hospital appointments

    Make sure the Government prioritises eye care by asking your MP to attend a Parliamentary reception to learn how they can help to stop people losing sight.

    You can write to your MP by using the template letter below or by taking RNIB’s simple online action that will send the letter to your MP for you visit http://bit.ly/EyeAPPGWeb

    Alternatively contact by email, Facebook or Twitter.

    1. Sending the message in an email

    Email subject line: Act now to stop people losing sight

    The NHS eye care system is currently failing patients, service provision is not keeping pace with demand, meaning that hospitals are delaying and cancelling appointments, resulting in people losing sight.

    The All Party Parliamentary Group on Eye Health and Visual Impairment (APPG) held an inquiry in to this problem and on June 6 will release its findings at a report launch event.

    Ask your MP to attend the event and help to stop people losing sight due to delayed and cancelled appointments. You can either use the template letter attached and send it to your MP or take RNIB’s simple online action which will send the letter to your MP for you. Visit http://bit.ly/EyeAPPGEm

    2. Tweeting

    Ask your MP to attend the @EyeHealthAPPG report launch and help stop people losing sight due to cancelled or delayed appointments http://bit.ly/EyeAPPGTw

    3. Facebook

    Ask your MP to attend the All Party Parliamentary Group on Eye Health and Visual Impairment report launch and help stop people losing sight due to cancelled or delayed appointments in eye clinics across England http://bit.ly/EyeAPPGFb

    -----------------------------------------------------------------------------------------------------------------------------------------

    4. Contacting by Letter

    Insert name

    Insert address

    Insert date

    Dear XXX

    Re: Capacity crisis in NHS Eye Care: APPG report launch, 6 June

    I am one of your constituents and a patient at XXXX using eye care services((insert name of hospital or delete if more appropriate). I am aware that the increase in demand for eye care services in recent years means patients are experiencing delays in accessing sight saving care and treatment. Research shows that as a result of these delays and hospital cancellations some patients are permanently losing sight, despite the availability of sight saving treatments.

    The All Party Parliamentary Group for Eye Health and Visual Impairment has conducted an inquiry to identify solutions to the capacity crisis in England, to ensure that services meet demand.  The inquiry report will be launched at a reception in Parliament on 6 June 2018 from 4pm to 6pmin the Churchill Room.

    You will have received an invitation from the Royal National Institute of Blind People (RNIB)and the Optical Confederation; I hope that you are able to attend the reception to learn about the situation in your Sustainability and Transformation Partnership area, and about what you can do to tackle the crisis.Please RSVP to Jessica Ford at RNIB (Jessica.ford@rnib.org.ukor 0207 391 2184)

    I would very much appreciate hearing what action you will take after the event to promote implementation of the recommendations from the inquiry.

    Yours sincerely,

     

     

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  • Don’t risk glaucoma - a sight-stealing condition - highlights the Association of Optometrists and IGA

    “Misdiagnosed glaucoma almost cost me my sight” – Palmers Green resident, Sheryll Karpel, thanks optometrist who helped her after the condition went undetected for three years.

    This National Glaucoma Week (4-10 June 2018), the Association of Optometrists (AOP) is highlighting the importance of regular eye health checks in detecting sight-threatening conditions such as glaucoma – warning that the signs often go unnoticed.

    Sheryll Karpel, from Palmers Green, suffered what she thought were optical migraines only to discover that she had an eye condition which could have permanently damaged her eyesight. Now she is reminding others to have regular sight tests to help safeguard their vision and raise awareness of glaucoma.

    Ms Karpel frequently visited her GP over a three-year period: “I was suffering terribly with these regular attacks. I would be in awful pain for hours and the only thing that helped was laying down. When I listed the symptoms to my doctor, like headaches and coloured halos, I was told that I had optical migraines but every treatment I tried didn’t work.” Ms Karpel’s attacks became more frequent, from every three months to every three days.

    Following a massive glaucoma attack, it was discovered, at a hospital examination, that Ms Karpel had closed-angle glaucoma – a condition considered a medical emergency that can rapidly damage the optic nerve: “My intraocular pressure, the fluid pressure inside the front part of my eye, was up to 60mmHg which I was told, in many cases would have caused permanent damage and I could have lost my sight – that outcome would have been devastating.” Ms Karpel needed emergency laser treatment at Moorfield’s Eye Hospital to make holes in the iris to reduce her intra-ocular pressure.

    After the diagnosis and surgery, Ms Karpel registered with a local north London optometrist at Harley Bain Opticians. Ms Karpel said: “Although the procedure was successful, I had post-op complications – inflammation and retinal oedema. The prescription in my eyes was now so different that it made my vision very blurred and I often felt sick and dizzy. These symptoms, on a daily basis, became unbearable which is why I decided to visit a local practice.”

    To help alleviate these symptoms, AOP member and optometrist, Harley Bain prescribed temporary eyewear while Ms Karpel awaited surgery on her left eye. Describing the difference it made, Ms Karpel said: “I was completely taken aback by the time Mr Bain took to make sure that I came away with glasses that really helped me – he spent over an hour examining my eyes and asking lots of questions. After struggling for so long, it was a huge relief to have that level of care.”

    Speaking about her condition, Mr Bain said: “It might not have felt like it, but Ms Karpel is actually very lucky to be making the recovery that she is. Glaucoma is a very serious eye condition – it’s one of the leading causes of severe sight impairment. Unlike open-angle, or chronic, glaucoma, where symptoms develop slowly over time, closed-angle glaucoma can occur very quickly and if left untreated causes severe and permanent damage to your vision.”

    Karen Osborn, Chief Executive from the International Glaucoma Association (IGA) said: “Glaucoma is the name given to a number of eye conditions. People with angle closure glaucoma will know that there is something wrong with their eyes and seek help, unlike the more common form of glaucoma in the UK which is primary open-angle glaucoma. This type of glaucoma has no obvious early symptoms and is why we stress the need for regular eye health checks to take place throughout life. All too often we hear from people who are distressed to realise that the sight they have lost cannot be recovered, and that an eye health check could have detected glaucoma earlier”.

    Ms Karpel added: “My experience demonstrates why it’s just so important to have regular sight tests. It’s easy to take your sight for granted but looking back, if I’d talked to an optometrist about my symptoms sooner, it may have been picked up earlier and the outcome would have been much better.”

    National Glaucoma Week is taking place 4-10 June 2018. To raise awareness of the condition, the AOP is launching a new video, ideal for sharing on social media, to highlight key symptoms. For more information about glaucoma and treatment options, read the AOP’s patient leaflet and the IGA’s leaflets on closed angle glaucoma and open angle glaucoma.
    Information on a range of conditions, and general tips for looking after eyes, is available at www.aop.org.uk/patients. The IGA is the charity for people with glaucoma and has a helpline 01233 648 170 and website www.glaucoma-association.com.

    Images and the AOP’s glaucoma awareness video can be downloaded here.

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  • INTERNATIONAL GLAUCOMA ASSOCIATION WARNS MUSLIMS NOT TO STOP TAKING EYE DROPS DURING RAMADAN

    The International Glaucoma Association (IGA) advises Muslim glaucoma patients not to stop taking eye drop medication during Ramadan (Tuesday 15 May to Thursday 14 June) as stopping drops even for a short period of time can cause permanent loss of vision.

    Hospital reports and calls to the IGA helpline have indicated that some Muslims cease using their eye drops during Ramadan, believing that using the eye drops will break their fast. Even more worrying is that many of these patients then stop using the drops completely when they don’t perceive any change to their sight. This will not be apparent to the individual until significant sight loss has occurred.

    Glaucoma is a group of eye conditions in which the optic nerve is damaged, usually by excessive pressure within the eye. If left untreated, glaucoma can lead to serious loss of vision, with up to 40 per cent of sight being permanently lost before the effects are noticed by the individual.   Fortunately glaucoma is the most common cause of preventable blindness and for the majority of glaucoma patients, daily eye drops are a simple solution to control their condition and save their sight.

    Subhash Suthar, IGA Development Manager, comments: “We want to reassure the Muslim community that drops can be taken before dawn and after sunset (known as Suhoor and Iftar), when food and drink can be consumed. We also suggest that patients close the tear duct when taking eye drops (known as punctual occlusion) as this means that fluid stays in the eye and does not drain into the throat and so cannot be tasted. This is achieved by putting finger pressure at the corner of the eye next to the nose (punctual occlusion) immediately after instilling drops. It is distressing when patients realise through a follow up appointment at their ophthalmologist or optometrist that their vision has been damaged through stopping drops. ”

    The IGA is working with the Muslim Council of Britain (MCB) to raise awareness of this issue.

    MCB’s Deputy Secretary General Dr Omer El-Hamdoon, has confirmed that all Islamic Schools Of Thought agree that taking eye drops does not invalidate the fast unless the eye drops reach the throat, which is unlikely. More so, Islam advocates that people take care of their bodies.

    IGA Advice for eye drops during Ramadan:

    1. Do not stop eye drops during Ramadan- all Schools of Thought support this
    2. If you are still doubtful, use morning drops at Suhoor and evening drops at Iftar
    3. Try practicing punctal occlusion following instillation of drops

    As National Glaucoma Awareness Week approaches (4-10 June) the IGA also advises anyone planning a summer holiday to make sure they take their eye drops with them, as some patients either forget to take their drops with them, or think it will be fine to stop taking them while away, which could lead to serious sight loss.

    The IGA works with all professionals involved in glaucoma management to educate about the need for good eye drop use and compliance. It helps to set up local patient support groups within hospitals and has some simple tips and films available on our website.

    For more information on the IGA call 01233 64 81 64 or log onto
    www.glaucoma-association.com

    -ENDS-

    For further information please contact Annabel Hillary, 07884 430862, annabel@prwhenyouneedit.co.uk

    or Mary-Jane Greenhalgh, 07866 722051, maryjane@prwhenyouneedit.co.uk

    or Karen Brewer on: 01233 64 81 64 or email: K.Brewer@iga.org.uk or R.Kew@iga.org.uk

    About the International Glaucoma Association (Charity Registered in England & Wales no. 274681, in Scotland no. SC041550)

    1. The International Glaucoma Association (IGA) is the charity for people with glaucoma, with the mission to raise awareness of glaucoma, promote research related to early diagnosis and treatment, and to provide support to patients and all those who care for them. For more information, please visit:

    www.glaucoma-association.com

    1. Set up in 1974, it is the oldest patient based glaucoma association in the world and it is a Charity Registered in Scotland, Northern Ireland, England & Wales.
    2. As part of its support services, it operates the IGA Sightline (helpline) and provides free information on any aspect of glaucoma.

    4. For more information about glaucoma, contact the International Glaucoma Association (IGA) Sightline on 01233 64 81 70 (Monday to Friday, 9.30am–5.00pm).

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  • High level Education Strategic Review consultation responses show support for new education approach

    The GOC has published some high level findings from its Education Strategic Review concepts and principles consultation. 

    The high level summary publication shows 97 per cent of respondents agreed with the development of new education standards for optometrists and dispensing opticians. 82 per cent agreed with embedding clinical experience progressively from the start of education programmes.

    Stakeholders also showed support for the GOC further informing its education requirements with its Standards for Practice for Optometrists and Dispensing Opticians, with 84 per cent in favour of embedding professionalism into education and training programmes. 

    GOC Chief Executive and Registrar, Vicky McDermott said: “We are delighted to have received many supportive responses to the consultation that will enable us to work at pace to develop our detailed proposals to equip future professionals with the skills, knowledge and behaviours needed to practise safely and competently in a changing sector.

    “We will make concerted progress in the coming months to transform these concepts into workable approaches for the future.”

    The GOC’s Education Strategic Review concepts and principles consultation ran from December 2017 to March 2018, comprised 21 questions and sought feedback on 11 concepts and principles. A total of 36 responses were received to the consultation, 26 from organisations and 10 from individuals.  

    The GOC has also commissioned a full independent analysis of the consultation feedback and will publish this separately. 

    To read the high level findings summary please visit: https://www.optical.org/en/Education/education-strategic-review/supplementary-reading.cfm

    ENDS

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  • Two New Trustees Join the Council of the International Glaucoma Association

    The International Glaucoma Association (IGA) announces that two new trustees, David Sanders and Susan Blakeney, have joined the IGA Board, which is chaired by Philip Bloom, Consultant Ophthalmologist at the Western Eye Hospital.

    David Sanders is a chartered accountant with more than 30 years of experience in various senior managerial positions, including acquisitions, corporate governance, financial control, IT, logistics, HR and audit, working for companies such as Price Waterhouse Coopers, Litton Industries and Omron Corporation a Japanese multinational company.

    For the last four years, David has held honorary positions for Access Stichting, a Dutch organisation supporting expats and campelle Euf, an organisation supporting foreign students at the Flensburg University.

    Susan Blakeney is a practising optometrist.  As well as her optometry degree and professional certificates in glaucoma and medical retina, she also has an MA in medical ethics and law, a bachelors and a masters degree in law and a PhD. Susan is Clinical Adviser to the College of Optometrists, Optometric Adviser to NHS England (South (South East)) and a case examiner for the General Optical Council.  She was awarded the Fellowship of the College of Optometrists for her contribution to the profession in 2008. She has published several papers and her book chapter on ‘Legal aspects of optometry in the United Kingdom’ was published in 2009.

    Picture by www.edwardmoss.co.uk
    All rights reserved
    College of Optometrists conference, York 2014.

    Commenting on the new trustees, Chair of the IGA Board, Philip Bloom, says, “We are delighted that two such high calibre individuals have joined our Council, bringing such useful experience and skills.  David’s business background will ensure that our future strategy is robust, while Susan’s optometry and legal background will also be invaluable in guiding our existing and future services, including dealing with the wider optometry industry and stakeholders.’

    The International Glaucoma Association is the charity for people with glaucoma. Established over 40 years ago, it raises awareness, promotes research related to early diagnosis and treatment, and provides support to patients and all those who care for them. In addition it also part funds the IGA Professor of Ophthalmology for Glaucoma and Allied Studies, Professor David Garway-Heath, at UCL and Moorfields Eye Hospital, London. Other services include: a helpline, patient information, patient support groups, events for professionals and patients, as well as providing grants for research funding. It is run by a board of trustees which represents ophthalmologists, optometrists, ophthalmic nurses and people with glaucoma.

    -ends-

    For further information please contact Karen Brewer/Richenda Kew on: 01233 64 81 64 or email: K.Brewer@iga.org.uk or R.Kew@iga.org.uk

     

    About the International Glaucoma Association (Charity Registered in England & Wales no. 274681, in Scotland no. SC041550)

    The International Glaucoma Association (IGA) is the charity for people with glaucoma, with the mission to raise awareness of glaucoma, promote research related to early diagnosis and treatment, and to provide support to patients and all those who care for them. For more information, please visit:

    www.glaucoma-association.com

    1. Set up in 1974, it is the oldest patient based glaucoma association in the world and it is a Charity Registered in Scotland, Northern Ireland, England & Wales.
    2. As part of its support services, it operates the IGA Sightline (helpline) and provides free information on any aspect of glaucoma.
    3. For more information about glaucoma, contact the International Glaucoma Association (IGA) Sightline on 01233 64 81 70 (Monday to Friday, 9.30am–5.00pm).

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  • Eye health sector launches new SAFE approach to assist in improving the systems around the delivery of eye health and sight loss services in England

    PRESS RELEASE
    10 April 2018

    The Clinical Council for Eye Health Commissioning (CCEHC), which represents the leading clinical professions and sight loss charity organisations in the eye-care sector, has launched a new Systems and Assurance Framework for Eye-health (SAFE)1.

    Increasing demands on eye health services due to the ageing population and the availability of new treatments continue to create capacity issues within the hospital eye service as well as pressures on general practice and social care. SAFE provides a sustainable, consistent and coordinated approach to delivering efficient eye health and sight loss pathways.

    SAFE is aimed at those involved in eye health and sight loss services: Clinical Commissioning Groups (CCGs) and local authority commissioners, Local Eye Health Networks and providers across health and social care.

    SAFE is a series of core constructs and technical tools based on four principles:

    1. System-based approach to the planning, commissioning and provision of services, to improve patient flows and patient experience, which is operable at the level of an Integrated Care System (ICS) or Sustainability and Transformation Partnerships (STP) level.
    2. Assurance in delivering better outcomes for patients, and reduce duplication and waste of resources for the NHS
    3. Framework that provides consistency in the approaches taken to improve access, availability and integration of services taking into account the full range and complexity of care pathways that increasingly involve multiple providers and settings to deliver services across health and social care
    4. Eye-health conditions covered are the main adult chronic (Glaucoma and Age-related Macular Degeneration) and high-volume conditions (Cataract), but can be applied to any eye condition.

    Launching the new framework Parul Desai, Chair of the Clinical Council said:

    “The development of SAFE has been clinically led and clinically driven to ensure safe and effective services are available to meet individual and population eye health needs. This cross-sector initiative provides the basis for the organisation and delivery of pathways of care that patients can reasonably expect wherever they may live, with processes that provide assurance on quality and governance.”

    References:
    1. SAFE – System and Assurance Framework for Eye-health. 2018. Clinical Council for Eye Health Commissioning. www.ccehc.org.uk

    ENDS

    For media enquiries please contact: Ann-Marie Stevens, PR Manager, telephone: 020 7766 4342, email: annmarie.stevens@college-optometrists.org

    Notes to editors

    The Clinical Council for Eye Health Commissioning (CCEHC) represents the leading clinical professions and charity organisations in the eye-care sector. It is an independent advisory body providing evidence-based national clinical leadership, advice and guidance to policy makers in health, social care and public health, and those commissioning and providing eye health services in England. It is recognised as such through a Memorandum of Understanding with NHS England.
    Its member organisations are:
    • The Royal College of Ophthalmologists
    • The College of Optometrists
    • Association of Directors of Adult Social Services
    • Association of British Dispensing Opticians
    • British and Irish Orthoptic Society
    • Faculty of Public Health
    • Optical Confederation (including the Local Optical Committee Support Unit)
    • Royal College of General Practitioners
    • Royal College of Nursing (Ophthalmic nursing forum)
    • Royal National Institute of Blind People
    • International Glaucoma Association
    • Macular Society
    • Vision UK

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  • The IGA professor is 17th on the list of 100 most influential people in ophthalmology

    #17 David (Ted) Garway-Heath

    David (Ted) Garway-Heath

    IGA Professor of Ophthalmology for Glaucoma and Allied Studies, Consultant Ophthalmologist, Moorfields Eye Hospital, London, UK

    Ted’s research has yielded many new diagnostic and monitoring tools, including the Moorfields Motion Displacement Test that identifies the loss of peripheral vision; The Moorfields Regression Analysis, software that assists glaucoma diagnosis from scanning laser tomography images; and the Garway-Heath Map, which is used in research and clinical practice to map the correspondence between visual field and optic nerve head damage. He was chief investigator for the UK Glaucoma Treatment Study, the first placebo-controlled trial for the medical treatment of glaucoma with a visual field loss outcome. In his research, he aims to continue to improve glaucoma diagnostic techniques, clinical trial design and identify risk factors for glaucoma. He recognizes the importance of multidisciplinary collaboration for successful research and has long-term productive collaborations with statisticians, computer scientists and academics in other fields of medicine. Advancement of knowledge and scientific progress comes from bias-free dialogue with peers, mentees and mentors.

    Ted is fortunate enough to include amongst his mentors Roger Hitchings, with whom he undertook clinical and research fellowships, Joe Caprioli, with whom he did a research fellowship, and George Spaeth, mentor in turn to both Hitchings and Caprioli. As President of the European Glaucoma Society, his aims for the coming years are to increase patient participation in the Society, build the education resources, establish a common platform to measure care outcomes across Europe and strengthen ties with other national and international Glaucoma Societies.

    https://theophthalmologist.com/power-list/2018/

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