Learn more about the importance of eye health and how to safeguard your sight from key thought leaders like David Cartwright, Optometrist and Chairman, Eye Health UK: For further information click here.Our Head of Patient Support Services, Joanne Bradley, has also contributed an article explaining dyr eye disease, something that can be associated with glaucoma. The read her article click here.
On Thursday 15 August at Llanishen Hub (CARDIFF) a new social group for those living with a visual impairment will be starting from 12 - 2pm.
If you would like more information or If you would like to come along/know of anyone who may be interested then please contact Sue Baskerville: SBaskerville@caerdydd.gov.uk / SBaskerville@cardiff.gov.uk
Act now to stop people losing sight due to delayed and cancelled hospital appointments
Make sure the Government prioritises eye care by asking your MP to attend a Parliamentary reception to learn how they can help to stop people losing sight.
You can write to your MP by using the template letter below or by taking RNIB’s simple online action that will send the letter to your MP for you visit http://bit.ly/EyeAPPGWeb
Alternatively contact by email, Facebook or Twitter.
1. Sending the message in an email
Email subject line: Act now to stop people losing sight
The NHS eye care system is currently failing patients, service provision is not keeping pace with demand, meaning that hospitals are delaying and cancelling appointments, resulting in people losing sight.
The All Party Parliamentary Group on Eye Health and Visual Impairment (APPG) held an inquiry in to this problem and on June 6 will release its findings at a report launch event.
Ask your MP to attend the event and help to stop people losing sight due to delayed and cancelled appointments. You can either use the template letter attached and send it to your MP or take RNIB’s simple online action which will send the letter to your MP for you. Visit http://bit.ly/EyeAPPGEm
Ask your MP to attend the @EyeHealthAPPG report launch and help stop people losing sight due to cancelled or delayed appointments http://bit.ly/EyeAPPGTw
Ask your MP to attend the All Party Parliamentary Group on Eye Health and Visual Impairment report launch and help stop people losing sight due to cancelled or delayed appointments in eye clinics across England http://bit.ly/EyeAPPGFb
4. Contacting by Letter
Re: Capacity crisis in NHS Eye Care: APPG report launch, 6 June
I am one of your constituents and a patient at XXXX using eye care services((insert name of hospital or delete if more appropriate). I am aware that the increase in demand for eye care services in recent years means patients are experiencing delays in accessing sight saving care and treatment. Research shows that as a result of these delays and hospital cancellations some patients are permanently losing sight, despite the availability of sight saving treatments.
The All Party Parliamentary Group for Eye Health and Visual Impairment has conducted an inquiry to identify solutions to the capacity crisis in England, to ensure that services meet demand. The inquiry report will be launched at a reception in Parliament on 6 June 2018 from 4pm to 6pmin the Churchill Room.
You will have received an invitation from the Royal National Institute of Blind People (RNIB)and the Optical Confederation; I hope that you are able to attend the reception to learn about the situation in your Sustainability and Transformation Partnership area, and about what you can do to tackle the crisis.Please RSVP to Jessica Ford at RNIB (Jessica.firstname.lastname@example.org 0207 391 2184)
I would very much appreciate hearing what action you will take after the event to promote implementation of the recommendations from the inquiry.
Nutrition and Sight Loss
United Reform Church
30 Fisherton Street
Salisbury SP2 7RG
Friday 22nd September 2017
10.00am to 1.00pm
Promoting the importance of nutrition, lifestyle and well being on eye health.
Programme includes exhibitions and interactive displays, presentations and cooking demonstrations.
Supported by Salisbury NHS Foundation Trust, International Glaucoma Association, RNIB, Macular Society, WSUN and many more.
For further details please contact Debbie Furnell at Social Barriers Solutions by email on email@example.com or by calling on 07719 37 57 76
The International Glaucoma Association is focusing on the importance of eye pressure in detecting glaucoma as part of National Glaucoma Awareness Week (12 – 18 June 2017).
People regularly check the pressure in car tyres, the boiler and even check their blood pressure regularly but who thinks about eye pressure?
It is the pressure in the eye which keeps it inflated. If it is too high it can lead to irreversible damage to the optic nerve leading to loss of vision. It is estimated that there are 64 million people with glaucoma worldwide and 600,000 in the UK, with half undetected.
“People have such a limited knowledge about the health of their eyes. All too often we hear that people do not have an eye health check until they realise that something is wrong with their vision. This is too late for glaucoma as a significant amount of vision will be lost and it can never be recovered,” comments Karen Osborn, Chief Executive of the International Glaucoma Association.
This year’s campaign is to educate people about the importance of eye pressure as part of a regular eye health check. If detected early, glaucoma can be managed and useful sight can usually be maintained throughout life.
The tests are quick, simple and convenient. A visit to the local high-street optician is all that is needed to see if you are at risk of glaucoma. There are three simple tests which include:
- Looking at the appearance of the main nerve in the eye, called the optic nerve (ophthalmoscopy)
- Measuring the pressure in the eye, often referred to as the air puff test, (tonometry)
- Checking the field of vision (perimetry). In Scotland there is a fourth test called pachymetry which measures the corneal thickness.
“Our helpline takes calls from people who are shocked to realise that had they had an eye health check earlier, then they may not have lost a significant portion of their sight. Glaucoma is known as the silent thief of sight for a good reason, as the brain fills in the missing parts of vision and it isn’t until there is significant sight loss that a person thinks to visit an optometrist who can help to detect what is happening”.
The IGA believes that everyone should have an eye health check every two years and more frequently if advised by a health professional.
About the International Glaucoma Association:
The International Glaucoma Association (IGA) is the charity for people with glaucoma. Its mission is to raise awareness of glaucoma, promote research related to early diagnosis and treatment, and to provide support to patients and all those who care for them. For more information, please visit: www.glaucoma-association.com
- Set up in 1974, it is the oldest patient based glaucoma association in the world and it is a registered charity in England and Wales, and also in Scotland
- As part of its support services, the IGA operates the Sightline (telephone helpline) and provides free information on any aspect of glaucoma.
- For more information about glaucoma, contact the International Glaucoma Association (IGA) Sightline on 01233 64 81 70 (Monday to Friday, 9.30am–5.00pm).
- In England, Wales and Northern Ireland close relatives of people with glaucoma who are aged 40 plus can have a sight test and examination by an optometrist which is paid for by the NHS, and everyone aged 60 and over is entitled to free testing In Scotland, the NHS will pay for glaucoma examinations offered by optometrists, regardless of age.
14 March 2017
Patients are being helped to take care of their sight under a new pilot scheme to end cancelled, delayed or missed eye clinic appointments.
RNIB (Royal National Institute of Blind People) is trialling a patient self-advocacy project in partnership with the Macular Society, International Glaucoma Association, and The Royal College of Ophthalmologists.
Ask & Tell empowers patients to ask their eye doctor when their next appointment should be, and to tell reception staff so it is kept. It creates awareness with reception and administration staff in eye clinics about the importance of follow up appointments to avoid preventable sight loss. Ask & Tell also aims to encourage patients to not miss their appointments.
During the six month pilot, patients can access a range of Ask & Tell resources and information online and in the eye clinic to support them to look after their sight.
Around 20 patients a month in England experience sight loss as a result of hospital-initiated appointment delays, according to The Royal College of Ophthalmologists’ research ‘Surveillance of sight loss due to delay in ophthalmic treatment or review: frequency, cause and outcome’1.
Fazilet Hadi, Director of Engagement at RNIB, said:
“We’re delighted to be running the Ask & Tell pilot in partnership with the Macular Society, International Glaucoma Association, and The Royal College of Ophthalmologists.
“We know it’s vital for patients to attend their eye clinic appointments and to have timely access to effective diagnosis and treatments. Delaying, cancelling or missing an appointment can lead to loss of sight, which could have been prevented.”
Cathy Yelf, Chief Executive of the Macular Society, said:
“Understandably, patients get very frightened when their appointments are delayed or cancelled because they know the consequences. We look forward to piloting Ask & Tell and hope it will mean more patients get access to the timely treatment they need.”
Karen Osborn, Chief Executive of International Glaucoma Association, said:
“We know from our helpline and from our own research that delays to hospital appointments are increasing. Callers are anxious and stressed about the impact this will have on their condition. We are delighted to be working with RNIB, the Macular Society, and The Royal College of Ophthalmologists to highlight this issue and believe this campaign will have a positive impact on patients".
Professor Carrie MacEwen, President of The Royal College of Ophthalmologists, said:
“The Ask & Tell initiative is a great example of providing patients with tools that encourage them to manage and understand the importance of keeping their scheduled eye appointments as advised by consultants.”
RNIB will use feedback from the pilots to inform a roll out of Ask & Tell across England later this year.
For more information about Ask & Tell, please visit: www.rnib.org.uk/askandtell
Notes to editors
The hospitals taking part in the Ask & Tell pilot are:
• Manchester Royal Eye Hospital
• Royal Blackburn Hospital
• Salisbury District Hospital
• West of England Eye Unit at Royal Devon & Exeter Hospital
• Great Western Hospital, Swindon
• Moorfields Eye Hospital, Old Street site, London
• Heartlands Hospital, Birmingham
1. BOSU Study: Authors B Foot and C MacEwen ‘Surveillance of sight loss due to delay in ophthalmic treatment or review: frequency, cause and outcome’ http://www.nature.com/eye/journal/vaop/ncurrent/full/eye20171a.html
All media enquiries to Anabel Unity Sale on 020 7874 1360 or firstname.lastname@example.org. Or, for urgent enquiries out-of-hours, please call 07968 482 812.
Every 15 minutes, someone in the UK begins to lose their sight. We are the Royal National Institute of Blind People (RNIB) and we're here for everyone affected by sight loss – that's over 2 million people in the UK. If you, or someone you know, has a sight problem, RNIB can help. Call the RNIB Helpline on 0303 123 9999 or visit www.rnib.org.uk
About the Macular Society
The Macular Society is a leading UK charity that aims to reduce the fear and loneliness of sight loss and funds medical research to find a cure for macular diseases. We have around 340 Macular Society support groups, and a range of other services, including patient advocacy, so no one has to face macular disease alone. Our helpline is 0300 3030 111.
About the International Glaucoma Association
1. The International Glaucoma Association (IGA) is the charity for people with glaucoma. Its mission is to raise awareness of glaucoma, promote research related to early diagnosis and treatment, and to provide support to patients and all those who care for them. For more information, please visit: www.glaucoma-association.com
2. Set up in 1974, it is the oldest patient based glaucoma association in the world and it is a registered charity in England and Wales, and also in Scotland.
3. As part of its support services, the IGA operates the Sightline (telephone helpline) and provides free information on any aspect of glaucoma.
4. For more information about glaucoma, contact the International Glaucoma Association (IGA) Sightline on 01233 64 81 70 (Monday to Friday, 9.30am–5.00pm).
5. In England, Wales and Northern Ireland close relatives of people with glaucoma who are aged 40 plus can have a sight test and examination by an optometrist which is paid for by the NHS, and everyone aged 60 and over is entitled to free testing In Scotland, the NHS will pay for glaucoma examinations offered by optometrists, regardless of age.
About The Royal College of Ophthalmologists
The Royal of Ophthalmologists (RCOphth) is the professional membership organisation for eye doctors. We champion research, the science and practice of ophthalmology through training, assessment and continuing professional development. We advocate the timely diagnosis and treatment of patients to preserve sight and prevent avoidable blindness.
Anabel Unity Sale
Senior PR Officer
RNIB (Royal National Institute of Blind People)
105 Judd Street, London WC1H 9NE
t: 020 7874 1360 Out of hours press line: 07968 482 812
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Help us to ensure that blind and partially sighted people can access vital vision rehabilitation services. For more information, go to www.rnib.org.uk/seeandplan
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IGA Response to Parliamentary and Health Service Ombudsman (PHSO) Driven to despair, “How drivers have been let down by the Driver and Vehicle Licensing Agency”, 20 October 2016
Comments Karen Osborn, Chief Executive International Glaucoma Association
“The IGA welcomes the findings and recommendations in the Parliamentary and Health Service Ombudsman (PHSO) report, and in particular the need for clear evidence-based standards to assess whether people with glaucoma are fit to drive.
The IGA has been alerted to many of the issues covered in this report by our members. This has led to a positive relationship being developed with the DVLA Drivers Medical Group, resulting in improvements around administration and communication. There is now clearer information about the tests and testing conditions that drivers with glaucoma should expect when visiting the DVLA approved Specsavers store, when a person can seek a second opinion if a licence is revoked (and the process for this), as well as a named contact at the DVLA for people with glaucoma to approach about their application.
But more scientific research and evaluation is needed to decide whether one of the standards used to assess the ability of people with glaucoma to drive safely, called the visual field test, is fit for purpose. When a decision to revoke a licence is life-changing, the applicant must have confidence that the test being used is appropriate, robust and equitable.
We are concerned that statistics from the DVLA show that 62 per cent of car drivers and 35 per cent of bus, lorry and coach drivers’ who contest the original revocation decision, are subsequently found safe to drive. If the Government and the DVLA were to invest in more realistic tests of visual function, this would benefit not just drivers with glaucoma but patients with, or at risk of all types of visual disability.
If anyone feels that a driving licence revocation has been made that does not reflect their own understanding of their safety to drive, we urge them to discuss this with their own optometrist and then talk to the DVLA. Our helpline, Sightline can provide details of the process”.
The International Glaucoma Association is the charity for people with glaucoma, providing a free helpline and patient literature. Call 01233 64 81 70 or email: email@example.com. www.glaucoma-association.com
Click here for a copy of the report.
Notes for editors:
- *references available
For further information or to interview an IGA spokesperson, please contact: Karen Brewer, Head of Communications on: 01223 64 81 69 or email firstname.lastname@example.org
Family Focus for National Glaucoma Awareness Week 2016 as IGA Urges Regular Eye Checks for Families of Glaucoma Patients
For this year’s National Glaucoma Awareness Week, 6-12 June, The International Glaucoma Association (IGA) is focusing on the need for close relatives of a known glaucoma patient, to have regular eye checks to prevent possible sight loss. Parents, children, brothers or sisters are up to four times more likely to develop glaucoma, when compared to people without a family history of glaucoma*.
It is estimated that there are 600,000 people with glaucoma in the UK today, but half are undiagnosed. It is the most common cause of preventable blindness, yet many people are unaware that glaucoma has no symptoms in the early stages. But, if left untreated glaucoma can lead to serious loss of vision, with up to 40 per cent of sight being permanently lost before the effects are noticed by the individual. Once sight is lost it cannot be recovered.
Regular eye checks
Russell Young CEO of the IGA comments: “Our research has shown that one in three people (32 per cent)[i] diagnosed with glaucoma did not know glaucoma can be inherited. This is worrying given the increased risk that relatives have of developing the condition. When it comes to the general public, awareness of the inherited link is significantly lower, with only 49 per cent[ii] being aware of the link with family history.”
Continues Russell, “We regularly hear from people who have irretrievably lost their sight to glaucoma, as they haven’t had regular eye health checks. People are often angry and upset, to know that a quick and regular visit to their high street optometrist would have detected the condition. It is critical that family members have regular eye health checks throughout life, at least every two years, and more regularly if advised by a health professional. The earlier treatment starts the more likely that someone will retain useful sight for life.”
The IGA believes that everyone should have regular eye health checks, at least every two years and works with optometrists, eye clinic staff, voluntary groups and people across the country to help prevent sight loss unnecessarily. For people with a family history of glaucoma, eye checks are free in England, Wales and Northern Ireland for those aged over 40, and free in Scotland regardless of age.
- Glaucoma is a group of eye conditions in which the main nerve to the eye (the optic nerve) is damaged where it leaves the eye. This nerve carries information about what is being seen from the eye to the brain and as it becomes damaged vision is lost.
- Glaucoma is more common in people over the age of 40.
- There are no early symptoms of glaucoma
- Symptoms of advanced glaucoma include missing, patchy vision and even serious loss of vision
- Regular eye health checks (every two years, or every 1-2 years for over 40s) will detect conditions such as glaucoma, which is important given there are no early symptoms
- With regular treatment for glaucoma, vision and driving licences can be protected
- Most people with glaucoma will be safe to drive for many years, but it important to alert the DVLA to the condition if advised by an ophthalmologist.
Notes for editors:
- *references available
For further information or to interview an IGA spokesperson, please contact: Karen Brewer, Head of Communications on 01233 64 81 69 or email email@example.com
Please see attached a case study of Hayley Mason’s glaucoma experience. Further case studies are available on request: Hayley Mason Case study
About the International Glaucoma Association:
- The International Glaucoma Association (IGA) is the charity for people with glaucoma, with the mission to raise awareness of glaucoma, promote research related to early diagnosis and treatment, and to provide support to patients and all those who care for them. For more information, please visit glaucoma-association.com
- Set up in 1974, it is the oldest patient based glaucoma association in the world and it is a Charity Registered in Scotland and also England & Wales.
- As part of its support services, it operates the IGA Sightline (helpline) and provides free information on any aspect of glaucoma.
- For more information about glaucoma, contact the International Glaucoma Association (IGA) Sightline on 01233 64 81 70 (Monday to Friday, 9.30am–5.00pm).
Close relatives in England, Wales and Northern Ireland can have a sight test and examination by an optometrist which is paid for by the NHS if they are aged over 40, and everyone is entitled to free testing over the age of 60. In Scotland, the NHS will pay for glaucoma examinations offered by optometrists, regardless of age.
[i] IGA Members research (n=977), 2014
[ii] IGA Research (Fly Research 2014)
IGA Professor of Ophthalmology, Glaucoma and Allied Studies is recognised for the second consecutive year as one of the most influential people in ophthalmology today. For the second year running, Professor David Garway-Health has been included on the Ophthalmologist Power List 2016.
Comments Russell Young; "Professor Garway-Heath's achievements are considerable. We are fortunate that, as well as his work as the Vice President of the European Glaucoma Society, his work with the University of London, his Consultant position at Moorfields Eye Hospital, he is also able to act as a clinical advisor and spokesperson for the IGA".
Research by David (Ted) Garway-Heath has provided many new tools that are in widespread use today. These include the Moorfields Motion Displacement Test; The Moorfields Regression Analysis, a software program for imaging performance in tomography; and the Garway-Heath Map, used in research to establish the correlation between visual field and optic nerve hypoplasia changes. In addition, his work on the UK Glaucoma Treatment Study showed that it was possible to reduce considerably the period needed to identify treatment effects, thus increasing the likelihood of bringing new drugs more quickly and more cost-effectively to patients.
For the full PowerList click here
Note to editors
- The Moorfields Regression Analysis software received world-wide acceptance that imaging is useful in the clinical management of glaucoma. This work was published by UCL in 2014. For further details click on this link: https://www.ucl.ac.uk/impact/case-study-repository/moorfields-regression-analysis
People with glaucoma are increasingly being let down by eye clinic departments with cancelled appointments as they are being overwhelmed by an increase in the number of patients being diagnosed and living with glaucoma. The impact this can have on a person with glaucoma is significant. Glaucoma often occurs because of raised pressure in the eye, which leads to damage to the optic nerve, causing sight loss. Once sight is lost from glaucoma, it cannot be recovered. Life-long treatment, often in the form of eye drops, is needed in order to control eye pressure.
Patients will be under the care of an Ophthalmologist (Eye care Consultant) at the hospital to monitor and treat their condition. This often involves changes to eye drop medication, and can lead to laser or surgical treatment. Without appropriate and timely care, a glaucoma patient can irretrievably lose sight having a significant negative impact on their quality of life.
Comments Russell Young, CEO IGA: “We know from our helpline, and from our own visits to hospital departments, a significant number of patients suffer from delayed or postponed appointments on a regular basis. This is unacceptable. People with glaucoma are often elderly, and feel uncomfortable about challenging the health system. We urge them to act, and to either contact the eye health department themselves or request a friend or relative to do so on their behalf. It is vital that appointments are made and kept”.
The IGA is a member of the Clinical Council for Eye Health Commissioning Group which provides recommendations to the NHS about how services can be re-organised to ensure patients are cared for correctly and appropriately. The IGA supports the Royal College of Ophthalmologists in the need for better data collection, better monitoring of eye health services and better use of qualified staff. This includes optometrists, ophthalmic nurses, ECLO’s, orthoptists and pharmacists who can all play a vital role in supporting people who have been diagnosed and living with glaucoma.
For further information about IGA and glaucoma, contact: Karen Brewer, 01233 64 81 69 or email: firstname.lastname@example.org