Glaucoma Association Forum

Our forum is moving!

Our current forum will close on 29 June.

As we are soon to become Glaucoma UK, we are excited to announce our new website forum will be moving to the world’s largest online support network- HealthUnlocked. We have our own community, currently International Glaucoma Association. People with questions or comments about glaucoma and related topics can post them on the site. Much like on our existing forum, people can respond and our staff will moderate responses. However, there are more things we can do with this site compared to the existing forum – we can post surveys or tell you about events and you can make friends with other members of the community. One big advantage of using an external site like HealthUnlocked is that they take care of spam or other junk posts. That means we can focus on getting the right information to you. You can also join communities linked to other conditions or topics.

Simply register here healthunlocked.com and join our community by typing International Glaucoma Association in the search bar, then click on “Community” you can then add yourself to our page. If you have already registered, then just click here healthunlocked.com/iga-uk to join.

You can still post to this forum as normal until 29 June. However, you may find HealthUnlocked a better experience – why not try it today? If you need any help with signing up, please contact our helpline on 01233 64 81 70 or sightline@iga.org.uk.

View Topic "support"

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Posted By: lynsey
Total Posts: 7
Joined Date: 16 Nov 2004
Can anyone help me? I had a corneal graft in left eye four years ago due to a nasty fungal infection which left the cornea scarred. Since then have been fighting a battle with high pressure in the eye, probably not helped by the fact that I have to use a steroid drop to avoid rejection of the graft. My specialist keeps nagging me to have this operation, but I am totally incapable of making the decision. Have been putting it off with various excuses - my daughter's wedding, my elderly parents etc etc. Now due for another checkup and know it will be raised again. I have read extensively the subject of this operation and am scared rigid. Do I have it, oir not, do I ask for a general anaesthetic or local, do I beg for sedation. Do I not have the op at all. I seem to be at higher risk of failure due to previous surgery, how long will the recovery take, I have read of double vision and nausea lasting weeks.. Nobody seems to understand the turmoil and panic I feel, everyone thinks its a simple decision, have the operation and not lose my sight, but to me its not as simple as that. Can anyone offer any sensible advice? Preferably someone who has had the op. Abby
Posted : 17 Feb 2005
Posted By: Abby
Total Posts: 5
Joined Date: 17 Feb 2005
Hi Abby, As an Optometrist I hope my advice can help. Obviously if your IOP (pressure) is high, then there is still probably nerve fibre damage occuring. How are your fields? Have these deteriorated? There is a better way to monitor using GDxVCC laser scanning polarimetry or HRT (version 3 is best but in my opinion still not as accuracte as GDxVCC). This can monitor for nerve fibre damage. Obviously if you have this measured regularly in addition to your IOP and threshold fields and there is no deterioration the you have to ask the question of is it necessary. However I suspect that if your consultant is recommending it then you do have deterioration. What are your pressures? At the end of the day if you are struggling to keep your IOP's down and you are getting damage to the nerve fibre layer and therefore reduction in your visual field I am afraid it probably is a no brainer - but you must decide.
Posted : 17 Feb 2005
Posted By: Alisdair
Total Posts: 21
Joined Date: 17 Feb 2005
Hi Abby, My specialist has kept on trying to get me to have a trabeculectomy, as my pressures were quite high. I asked about laser treatment and eventually had an SLT treatment (as opposed to ALT) Laser treatment is less invasive on the eye, and SLT can be repeated. The treatment worked and my pressures came down quite well. Perhaps you should ask your specialist although it's not as lucrative for them as a trabeculectomy ( that's me being sceptical) good luck
Posted : 17 Feb 2005
Posted By: saralikesjazz
Total Posts: 2
Joined Date: 17 Feb 2005
I have read about SLT and new intend to ask my consultant whether this would be suitable for me. I think I may be able to cope better with this than the thought of cutting my eye! I don't know whether this procedure is carried out in all eye departments or if I may need to ask to be referred somewhere else. I too get very sceptical about funding, so you are not alone there! Abby
Posted : 17 Feb 2005
Posted By: Abby
Total Posts: 5
Joined Date: 17 Feb 2005
Hi Abby, not all Ophthalmologists perform SLT, it tends to be the glaucoma specialists that do, you may not be seeing a consultant with a speciality in glaucoma. It is a fairly new procedure, not all the NHS hospitals have the laser, our local hospital only has one when they have it on loan! It is not suitable for treating everyone, but you need to find that out from a consultant with special interest in glaucoma. Rememeber thanks to good old Tony B you now have a choice of hospitals - you should have a choice of 5 - good luck!!
Posted : 17 Feb 2005

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