Glaucoma Association Forum

Our forum is moving!

Our current forum will close on 29 June.

As we are soon to become Glaucoma UK, we are excited to announce our new website forum will be moving to the world’s largest online support network- HealthUnlocked. We have our own community, currently International Glaucoma Association. People with questions or comments about glaucoma and related topics can post them on the site. Much like on our existing forum, people can respond and our staff will moderate responses. However, there are more things we can do with this site compared to the existing forum – we can post surveys or tell you about events and you can make friends with other members of the community. One big advantage of using an external site like HealthUnlocked is that they take care of spam or other junk posts. That means we can focus on getting the right information to you. You can also join communities linked to other conditions or topics.

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View Topic "My baby has glaucoma"

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Posted By: Kenneth Amos Gitau
Total Posts: 24
Joined Date: 30 Sep 2017
Hi Miriam, Thanks for sharing. I was also diagnosed when I was only 6 months old and now I am in my 30s. Everything will be alright. I assume you live in an industrialized country. I never had that privilege because I grew up in Africa where resources are scarce. Stick with your baby's regimen. Go for doctors' appointments as scheduled and be thorough in putting the eye drops if prescribed. Ken.
Posted : 7 Oct 2017
Posted By: Sightline
Total Posts: 309
Joined Date: 20 Feb 2009
Hello Miriam

Thank you for your enquiry about you daughter Isabella (gorgeous name by the way)!  We have a book regarding Babies and Children and I'm going to put you in touch with Wendy Sainsbury of the National Blind Childrens Society - please don't be put off by the name of this organisation!  She can be contacted on:  01278 764770.

If you would like our book Babies and Children, please ring us on 01233 64 81 70 or email on: and download from our website on

Very best wishes to you and your family


Posted : 1 Oct 2014
Posted By: Miriam
Total Posts: 1
Joined Date: 11 Sep 2014

I'm new on here, my name is Miriam and my daughter Isabella was diagnosed with glaucoma at 6 months, she has had two goniotomies, when we first found out the consultant said this operation there is a 90% chance of it curing her but after this last op its now only a fifty % chance, she may now need further surgery and need a trap door put in, any advice or experience would be very much appreciated as we are all new to this.Thanks.
Posted : 11 Sep 2014

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