Glaucoma Association Forum
View Topic "My baby has glaucoma"
Posted By: Kenneth Amos Gitau
Total Posts: 24
Joined Date: 30 Sep 2017
Thanks for sharing.
I was also diagnosed when I was only 6 months old and now I am in my 30s.
Everything will be alright. I assume you live in an industrialized country. I never had that privilege because I grew up in Africa where resources are scarce.
Stick with your baby's regimen. Go for doctors' appointments as scheduled and be thorough in putting the eye drops if prescribed.
Posted By: Sightline
Total Posts: 309
Joined Date: 20 Feb 2009
Thank you for your enquiry about you daughter Isabella (gorgeous name by the way)! We have a book regarding Babies and Children and I'm going to put you in touch with Wendy Sainsbury of the National Blind Childrens Society - please don't be put off by the name of this organisation! She can be contacted on: 01278 764770.
If you would like our book Babies and Children, please ring us on 01233 64 81 70 or email on: firstname.lastname@example.org and download from our website on www.glaucoma-association.com
Very best wishes to you and your family
Posted By: Miriam
Total Posts: 1
Joined Date: 11 Sep 2014
I'm new on here, my name is Miriam and my daughter Isabella was diagnosed with glaucoma at 6 months, she has had two goniotomies, when we first found out the consultant said this operation there is a 90% chance of it curing her but after this last op its now only a fifty % chance, she may now need further surgery and need a trap door put in, any advice or experience would be very much appreciated as we are all new to this.Thanks.