Glaucoma Association Forum

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View Topic "Having a now toddler with congenital glaucoma"

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Posted By: Nicbean
Total Posts: 13
Joined Date: 10 Jun 2009
Hi there I am a parent, my son is now 4. He was diagnosed at approx 4 months old. He had 14 operations, trabs, goniotomies etc.
We decided to have a 2nd son and went to see a genetic counsellor re your same worries of another child with Glaucoma. We were told that the chances were 1 in 4. So we thought what the hell and tried anyway. We got a 2nd son born with perfect healthy eyes..... touchwood.

I would say regarding controlled crying etc, just go with your instinct, we always let our son cry as we wanted him to be normal as possible, and unfortunately this means sometimes being upset. In my opinion crying will not affect his glaucoma, in fact if you give in to his every call due to this your life would become very difficult over the long term.

Hope this helps.
Posted : 14 Aug 2013
Posted By: HannahLeChat
Total Posts: 1
Joined Date: 16 Apr 2013
Hello there I have a 16 month old son who was diagnosed with congenital glaucoma at the age of 9 months we are still going through the procedures of examinations under anaesthetic with possible Goniotomy operations. He has had two ops in each eye so far. We seem to have levels okay but each appointment it is still unsure. My son is the youngest of two boys and I wish to have more children however he is proving to be quite a challenge especially with sleep at night, as he doesn't sleep longer than 5 hrs if that and every night it is always broken sleep. I was just wondering if anyone else's child didn't sleep the entire night. I do not want to do control crying because it could be his pressure being higher and I'm not an advocate for leaving children crying. It would be too much to have a baby and be attending to him. Also what is the chances of having another child with glaucoma? Also as he is not sleeping long stints I am worried it will cause development issues, really just want to know if anyone with a congenital glaucoma baby had these issues and if so did they get better? Than you
Posted : 16 Apr 2013

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