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Our forum is moving!

Our current forum will close on 29 June.

As we are soon to become Glaucoma UK, we are excited to announce our new website forum will be moving to the world’s largest online support network- HealthUnlocked. We have our own community, currently International Glaucoma Association. People with questions or comments about glaucoma and related topics can post them on the site. Much like on our existing forum, people can respond and our staff will moderate responses. However, there are more things we can do with this site compared to the existing forum – we can post surveys or tell you about events and you can make friends with other members of the community. One big advantage of using an external site like HealthUnlocked is that they take care of spam or other junk posts. That means we can focus on getting the right information to you. You can also join communities linked to other conditions or topics.

Simply register here healthunlocked.com and join our community by typing International Glaucoma Association in the search bar, then click on “Community” you can then add yourself to our page. If you have already registered, then just click here healthunlocked.com/iga-uk to join.

You can still post to this forum as normal until 29 June. However, you may find HealthUnlocked a better experience – why not try it today? If you need any help with signing up, please contact our helpline on 01233 64 81 70 or sightline@iga.org.uk.

View Topic "Why is glaucoma more uncomfortable when lying down and what is it like?"

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Posted By: ross4701
Total Posts: 1
Joined Date: 9 Nov 2011
My son (now 7 years old) was born with cataracts and developed glaucoma in both eyes particularly his right eye as a result of the sugery. He has now lost all sight in the right eye. He has had 32 procedures and is just about to go through his third and final attempt to mplant a tube (previous attempts went disatrously wrong). Because he is so young I wondered if someone older with glaucoma could explain to me how it feels, I have researched so far to no avail. When the pressure is high he struggles to sleep and either wakes through the night or very early and cannot drop back to sleep. The presure always seems to feel worse when he is lying down. I want to understand why! Would he benefit from sleeping propped up? He is on a massive amount of glaucoma meds including Diamox. Diamox also seems to interfere with sleep, not sure if this also makes him wakeful at times. When the pressureis fine he sleeps solidly for 12 hours, so I know it's not a sleep disorder. Please help, very tired parent!
Posted : 9 Nov 2011

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