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Don't like Glaucoma's drops side effects

01 January 1970, 1:00 AM › Go to Reply Form
carcasman
Joined: 01/01/2011
Posts: 1
Hello,

I'm a 20 years old man, and 6 months ago i was diagnosed with Glaucoma.
I was using Travaprost (Travatan), but due to the continual conjuntival hyperemia, my doctor changed it for Lavaprost (Lumigan), and it improve instantly.

My eyelashes gets wider and longer with the time, and even when people always say i want my eyelashes to grow! , it's not cool at all. Also the periocular area has been getting dark with the time, so people think i'm using make up. I don't feel confortable with my eyelashes getting long and curly, so i've been cutting them, even though they look weird.

Is anybody feeling discomfort with the side effects of Glaucoma's treatment?
As it is a chronic treatment, i can imagine people who have been using it for years have dealt with them. I would really appreciate to hear your experience, since there is not to many people of my age walking by there with Glaucoma.
Thanks
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Sightline
Joined: 01/01/2011
Posts: 122
Hello Carcasman,

The drop you are taking is a prostaglandin. Side effects from these drops are cosmetic. In your case you are obviously experiencing the long eyelashes. Also the darkening around the eyes.

When people are first diagnosed with glaucoma the first drop prescribed is normally a prostaglandin as this reduces the pressures in the eyes quickly.

We would suggest that on your next visit with your consultant, discuss your concerns with him. His concern will obviously be the reduction in your eye pressure as this reduces the risk of anymore damage being done to your optic nerve.If the pressure has gone down to a level which he is happy with he may want to keep you on these drops.
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icey
Joined: 01/01/2011
Posts: 2
Hi,
Lumigan 0.1 is just now (check in your country) available. This is a diluted version of Lumigan 0.3. It boasts reduced side effects and similiar effectiveness.
Check which one you take.
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Chrisc
Joined: 01/01/2011
Posts: 27
Hi, I was diagnosed with glaucoma last Saturday and started my drops that same evening. On Sunday night I developed a sore throat and thinking it may be the drops - Xalatan. I checked on the Internet for information. Within two hours I was finding it difficult to swallow. By the next morning I had developed a very bad cold which has lasted all week. I have had fever coming and going and a bad cough. I haven't felt well enough to go to work all week. I found some information on the net about people having these sorts of reactions but not much. I was wondering if anyone else has experienced this as a side effect and what their experience has been.
Best regards
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Bailey
Joined: 01/01/2011
Posts: 223
Hi,

I've been on Xalatan for about 4 months, and it does make my asthma worse, & makes my throat a bit sore, but previously I was on Lumigan and that made my eyes blood red, sore and very dry and hurt my teeth & gums! So Xalatan's the better deal for me!!

If you look on the side effects leaflet it can be fairly common.

Bsiley
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Chrisc
Joined: 01/01/2011
Posts: 27
Thanks for replying. I have been to my own doctor today because although I am feeling a bit better I still feel too ill to go to work. He doesn't seem to think it is the drops but has given me another week off work and told me to return if I get any worse. I think the drops have made me ill and I don't mind as long as it isn't forever. I have lost part of my sight and am frightened of losing any more but not sure if I can put up with having the flu for the rest of my life. I don't suffer with asthma but have a very chesty cough at the moment.
I will keep on with them and hope for the best.

Chris
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jiam
Joined: 01/01/2011
Posts: 1
Hi,

Found your comments on Xalatan interesting!

I have been using Xalatan for about 10 years and initially experienced cold and flu like symptoms. However with time these symptoms have diminished and are now only occasionally troublesome.

I also use Azopt and again these have side effects which seem to vary in intensity.

I changed from Trusopt to Azopt as the Trusopt side effects were unacceptable.

It seems to be a trade off - advantages of the drops against the disadvantages of the side effects.

Hope you improve and the symptoms are just a coincidence.

Best wishes
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Ceic
Joined: 01/01/2011
Posts: 1
Hey hi i just joined and your post was the first for me to read. im 20 years old too and i was diagnosed with glaucoma when i was 19, i go to UCLA for my treatment and everyone over there is always like shes so young so it was suprsing for me to see that someone else my age has it too. sorry just wanted to say >.<
My drops are a pain too im on Cosopt and Xlatan
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ziggy
Joined: 01/01/2011
Posts: 1
I have been using eye drops for the past 10/11 years. I have used alsorts but due to side affects during those years I am now on Timopotol (preservative free) twice a day and alsoT alfluprost (preservative free)at night. I am pleased to say they are now working fine the pressure is down and so far no side effects.
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MsTuba47
Joined: 01/01/2011
Posts: 1
I took Lumigan 0.03mg for one month and complained after one week, but was encouraged to continue using. After one month I could not deal with the tiredness, weakness, lack of energy, blurred vision, bloodshot eyes, drowsiness, dry and itchy eyes and flu like symptoms (sore and scratchy throat and cough) and just feeling lifeless. I called Dr and he wants to switch me to brimonidine, but before we ended the conversation switched to timolol. If evidently losing my eyesite is something hard to deal with, just feeling like I am ready to die from using these drops is definitely not the answer. I have stopped these drops and desperately seeking other alternatives. There has to be another safe way to treat Glaucoma. I could read before my drops without my glasses, now I cannot read anything unless I put my glasses on. I am looking forward to getting back to normal. It has been a week and still trying to get my body back on track. Wondering how long will it take for lumigan to get out of my system?
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Chrisc
Joined: 01/01/2011
Posts: 27
I am on Xalatan. For 5 weeks it gave me very bad flu. Then I started to lean forward after I took them and I got much better. Still have a slightly bunged up feeling but at least feel human again. I told my consultant today and he said it was fine to do this.
Hope it helps some of you out there.
Best wishes.
X
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ziggy
Joined: 01/01/2011
Posts: 1
i have been on several types of drops due to apparently suffering from a side effects. now I am on Safluton and Timolol (as maleate) both preservative free. During the time i have been using different drops i have found that I have lost quite alot of hair near the crown of my head and I was wondering if anyone else has experience the same problem.
07 February 2011, 17:02 PM › Go to Reply Form
annen
Joined: 01/01/2011
Posts: 2

I use Lumingan and was told to put pressure on the ijnner corners of the ye after drops placed in as this then stops the medicine getting into bloodstream.

i had got very sore but found this technique worked wonders and now fine with Lumigan drops

23 May 2011, 21:00 PM › Go to Reply Form
Jjudith
Joined: 23/05/2011
Posts: 5
23 May 2011, 21:08 PM › Go to Reply Form
Jjudith
Joined: 23/05/2011
Posts: 5

I always get really annoyed when people tell me eye drops are easy.  They are horrible for people of all ages.  I have just stopped taking eye drops (azopt) because I had a wrong diagnosis and I have had acute angle glaucoma and I had laser treatment.  After three days without the drops, I feel like a new woman - I can sleep properly and I just feel well and full of energy.  I will no longer be ruled by the alarm that I had to set to remember the drops.  My mother is 87 and she has arthritis.  My husband's step mother has mild dementia.  My husband's aunt went suddenly blind when she couldn't put in her drops due to a minor illness, and she is left with a blind and painful eye.  Young or old, drops make problems.

But at least on forums like this we can share our thoughts with people we know understand.  Anyone who says eye drops are easy or you will soon get used to them hasn't taken eye drops themselves. 

Keep pressing your consultant - tell him/her that you hate drops, and you would like more research into non-drop treatment of glaucoma. The more of us say it, the more they will look for alternatives.

06 March 2012, 13:02 PM › Go to Reply Form
Joined: 27/01/2012
Posts: 22
06 March 2012, 17:25 PM › Go to Reply Form
Karjade
Joined: 06/03/2012
Posts: 3
I have been diagnosed with bilateral normal tension glaucoma and I am too scared to ask too many questions.  The optic nerve is damaged - more so in the right eye.  I am on Xylatan at night which seems ok but I also need to take drops twice a day and was put on Alphagan.  Within five days of taking this I had bad digestive problems - feeling sick all the time and pains in chest and ribs.  The Consultant said it could quite likely be Alphagan causing this and then changed me to Azopt.  After taking this for a couple of weeks I have blurred vision and pains in the eyes.  I have changed back to Alphagan because the side effects did not seem as bad as Azopt.  However I have still got digestive pains and nausea and my doctor did some blood tests and I had a scan which all came back negative.  I know I have to carry on with the daytime drops to get the pressure as low as possible but all these side effects are making me really depressed plus the worry over my eyes.  I need reassurance that I am not going to go blind!! I am not due back at the hospital until June when I will be having a field test and an eye scan but as yet I have not got an appointment with the consultant.  Is there anyone else feeling the panic I am feeling?
08 March 2012, 11:45 AM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 136

Hello, Read Bailey\'s reply earlier this morning, unfortunately I now cannot find it to answer. Last week my suspicion that I had Blephaitis was confirmed by a consultant. For twelve months my right eyelid and the surrounding area has been red, sore and painful. The consultant recommended using Blephaclean wipes twice a day to clean the area and Doublebase gel. The effect of the gel for me has been dramatic with improvement within 24 hours.I feel very stupid because I have at times used 3 different eye drops at night I thought the white flakes at the base of my eye lashes was a build up of the drops, I have been cleaning my eye lids with cooled boiled water using a cotton wool bud then used the tinest smear of vasiline on the lids. Has anyone been prescribed anything for Blephaitis? Regards, Lavengro.

 

10 March 2012, 0:52 AM › Go to Reply Form
Bailey
Joined: 01/01/2011
Posts: 223
Hi Lavengro,

I was advised to use cooled boiled water, & cotton buds, Baking soda & water, or baby shampoo - urggh! I think I might ask to try the Doublebase gel if it\'s good!

thanks,
Bailey x
10 March 2012, 7:30 AM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 136
Hello Bailey, diagnosed eight years ago with normal tension glaucoma and a trab on the left two years ago, for the past two years various drops have been tried to reduce the pressure in the right the result is that my eyelid and surrounding area is red, sore and painful which I\'m told for me is Blephaitis. I\'m asthmatic but have never sufferd cold symptons, tried Timotol but this did affect the asthma. The Blephaclean wipes and double base gel have greatly reduced the soreness of the blephaitis. Can sightline or anybody explain what an eye scan is like please? Lavengro.
21 March 2012, 8:23 AM › Go to Reply Form
rosemarie
Joined: 23/05/2011
Posts: 1
I was on Tavatan loved the curly long lashes you get with it, but have been moved onto Timolol, much thicker drops and they seem to stay put, do you still have to put pressure on the tear ducts as you do withTavatan
23 March 2012, 7:20 AM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 136
Rosemarie, feel sure that putting pressure on the tear ducts to stop the medication entering the boodstream must be a good thing, but please check with your doctor, is there a number at your local hospital that you can ring. Lavengro,
23 March 2012, 15:22 PM › Go to Reply Form
Sightline
Joined: 01/01/2011
Posts: 122

Hello Rosemarie,

It is a good idea to do the Punctal Oclusion with whatever drop you take for your glaucoma. We have noticed that not all PIL\'s (patient Information leaflets) advise this to be done but we always suggest this to patients as it reduces the risk of any drop getting into the bloodstream and also getting that nasty taste at the back of the throat.

Hope this helps

Sightline

23 February 2013, 8:18 AM › Go to Reply Form
TomTom
Joined: 23/02/2013
Posts: 1
Do the side effects of Ganfort go if it is stopped, or my doctor changes it to another medication? I really don't like the side effects I'm getting: blackness round my eye and black hair growth round my eye too (which makes me look like I've got a permanent black-eye! Redness, long lashes, soreness and very dry eye. People are commenting on it at work, and I feel self-conscious.

Will these side effects go away if I stopped taking Ganfort?
21 October 2013, 10:15 AM › Go to Reply Form
PROFESSOR
Joined: 15/03/2012
Posts: 24
Switiched from Travatan to Saflutan( same family) It is preservative free  with the same effect as travatan,however there are a few reports that it works slightly less well in lowering the pressure.Personally I felt the advanages of using it such as less irration and less redness of the eye. I must stress that people react differently to differnt drops and I can only relate my personal experience with it.
22 October 2013, 12:27 PM › Go to Reply Form
angela50
Joined: 07/03/2013
Posts: 39
I have the black eyes too! it's just a patch under my eyes. I am not too worried about it TBH. There are worse side effects I could have. I am grateful the drops work. I've tried them all!
23 October 2013, 17:26 PM › Go to Reply Form
Beechleaf
Joined: 06/09/2013
Posts: 10

Hello to Professor and others with irritated eyes.

I now take 3 lots of drops and have been getting dry eyes and a lot of irritation on the rim of the eyelids. I assume these effects are mainly caused by the drops being absorbed on to the rim of the eyelid, which doesnít need to be treated for glaucoma. What Iím trying at the moment is to put a smear of olive oil on the rim of my eyelids before using the drops. The idea is that the oil forms a barrier and stops the eye drops being absorbed by the rim of the eyelid. To apply the oil I put a drop in a saucer, dip my finger in it, and then rub that finger gently all around the rim of the upper and lower eyelids.

I then put in my drops as normal and when thatís done gently wipe away the oily residue with a clean tissue.

It seems to me to be a better approach to stop the drops getting to the eyelids in the first place rather than let the eyelids be affected and then try to treat the consequences.

Does it work? Itís not perfect but my eyes are less dry and feel a lot less itchy. I have a better tear film on my eyes and this helps to sharpen my vision.

I have seen recommendations for using Vaseline on eyelids for similar reasons. My preference is for olive oil. It can be metabolised by the body more readily than Vaseline, it is a bit less messy and is more easily spread, and it has slightly anti-microbial properties.  Use plain olive oil, not something infused with garlic, or chillies! Olive oil has traditionally been used to soften ear wax deposits so I thought it might also help do the same for the waxy material that contribute to blepharitis.

 

Beechleaf

25 October 2013, 16:14 PM › Go to Reply Form
Sightline
Joined: 01/01/2011
Posts: 122

Hello Tom Tom,

Since your post A preservative free Ganfort called Ganfort UD has now been produced and started to become available from mid September in the UK.  many people have a bad reaction to Benzolkonium Chloride which can cause saw inflamed eyelids. If you haven't done so already have a talk with your consultant as he may well look at changing your prescription.

There is a clinically tested product recommended for sore lids/ Blepharitis called Doublebase Gel which is available fro you pharmacy.  This works well in treating and soothing the eye.

Sightline

08 November 2013, 12:38 PM › Go to Reply Form
responder59
Joined: 08/11/2013
Posts: 1
 I was first prescribed Travatan which gave me really sore eyes followed by Azopt which was even worse with severe headaches.   I have been on Timolol for two months.  I wake up with a crashing headache and libido is non existent.!     Pressures are  Left 19 Right 18.   I am type 2 diabetic well controlled on Metformin.   Due to see locum consultant on December 6th at local hospiatal.   GP has offered to arrange an appointment at Moorfiellds.   Wonder if this is worth pursuing?

Steve
20 November 2013, 16:21 PM › Go to Reply Form
Jandee236
Joined: 02/10/2013
Posts: 4
I would strongly recommend that you go to Moorfields, it is the centre of excellence. I'm 53 and have been treated by a local consultant for a few years but have been losing sight at an alarming rate. I asked to move and now have much more confidence in my Moorfields consultant who is treating my glaucoma much more aggressively. Previously I was on 2 types of drops a day (Travatan & Azopt) but now I have had a trabeculectomy on my left eye (where I had most damage/sight loss) and am on Lumigam & Cosopt for the right eye. These drugs are both preservative free which I feel us a far better option. I have my next fields test next week so we'll see then how things are going.....

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