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Bad side effects from eye drops

01 January 1970, 1:00 AM › Go to Reply Form
gladys
Joined: 01/01/2011
Posts: 1
I have been prescribed two different kinds of eye drops for early stage open-angle glaucoma. First it was Xalatan, for four weeks it was fine, then after six weeks my eyes really erupted and became very sore and red so I stopped taking it. Then I was given Lumigan, my eyes became just as sore in a few days of this. Both ended up giving me serious eye discomfort; aching, really tired, red eyes making it hard to read, and some depression. Does anyone have suggestions about how to reduce or tolerate the eye discomfort, or other eye drops that are less severe.
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Leodis
Joined: 01/01/2011
Posts: 42
Hello there

I've been on various drops over the years and some can give worse side effects than others. I'm currently on Xalatan which can make your eye colour darker and give you longer, darker eye lashes. I'm not so aware of it causing as much inflammation or soreness as Cosopt, another one I take which stings when I put it in. Some drops can also make you feel short of breath - I found this when I used a drop called Timolol and to a lesser degree with Cosopt which has Timolol in it.

I have an underlying disease which causes inflammation so my eye always looks slightly inflamed and larger than the eye without the glaucoma. I've just learned to live with it, really. Beware of stopping taking your drops as any aching feeling in your eye can mean your pressures are rising. Better to keep with the drops but tell your specialist who may be able to give you an alternative to try.

Also - some hints for putting drops in!

Look up and pull your lower lid away from your eye to from a small pouch to catch the drop.

After putting the drop in, close your eye and gently press your finger against the inner corner of the eyelid to prevent the drops from filtering off to other areas.

Wait for 5 minutes between drops if your doctor has prescribed more than one drop for each eye.
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Bailey
Joined: 01/01/2011
Posts: 223
Hi,

You probably will get used to the side effects of the drops as time goes by. I was the other way round, very bad with Lumigan, not so bad with Xalatan, Lumigan brings pressures down slightly lower though. As discussed on previous thread, Lumigan 0.01 is supposed to have same IOP lowering effect with less side effects, but if you can find a consultant that will let you try it, you'll be lucky!! (I have no idea why).

Also, I have an inflamed eye from ocular rosacea, for years, whenever anyone's said I look tired, or my eye looks sore, I said, 'oh don't worry, thats just 'allergy eye'' - yes, I even had a nickname for it, but never suspected anything was wrong!! Incidentally, my inflamed eye is smaller, with a bigger pupil, and it's always aching now, if that means anything - Anyone??
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Sightline
Joined: 01/01/2011
Posts: 121
Hello Gladys

It must be really horrible to have to put these drops into your eyes knowing that they are going to cause (sometimes) these side effects.
You could always try asking your consultant to offer you a preservative free alternative.
We hope that suggestion may be of help.
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gladys
Joined: 01/01/2011
Posts: 1
Hello Sightline,

Not sure what you mean by preservative free alternative - any specifics?

Thanks.

Gladys
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Bailey
Joined: 01/01/2011
Posts: 223
Hi,

The main one I've heard of is Saflutan, haven't tried it though:-

Saflutan
Tafluprost eye drops for use as monotherapy or with -blockers in open angle glaucoma or ocular hypertension.

PHARMACOLOGY

Saflutan (tafluprost) is an analogue of prostaglandin F2?.1 Like other drugs of this class, tafluprost reduces intraocular pressure by increasing the outflow of aqueous humour.

Bailey.
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Bailey
Joined: 01/01/2011
Posts: 223
Hi,

The main one I've heard of is Saflutan, haven't tried it though:-

Saflutan
Tafluprost eye drops for use as monotherapy or with -blockers in open angle glaucoma or ocular hypertension.

PHARMACOLOGY

Saflutan (tafluprost) is an analogue of prostaglandin F2?.1 Like other drugs of this class, tafluprost reduces intraocular pressure by increasing the outflow of aqueous humour.

Bailey.
14 March 2011, 15:24 PM › Go to Reply Form
Setters3
Joined: 01/01/2011
Posts: 3

I also have experienced many side effects of using drops and stop using them.  I was told by my opthamologist that it was the preservatives within the eye drops which cause these problems.  I have had a trab and a needle bleb on my right eye and laser on the left -nothing has helped reduce the pressure and so 3 months ago my consultant prescribed Saflutan (preservative free).  You have to keep these in the fridge. Unfortunately, not long after using them I experienced the same side effects and was told to stop.  Last week I was put back on Timolol LA in both eyes.  I must admit I am a reluctant user or drops due to these side effects.

15 March 2011, 16:25 PM › Go to Reply Form
optimist
Joined: 01/01/2011
Posts: 54

Do hope you are finding the Timolol LA drops are better for you - it is awful when you dread putting them in because of the side effect.

What side effects had you been having with the Saflutan, they are supposed to be better because they are preservative free?

16 March 2011, 14:42 PM › Go to Reply Form
Sightline
Joined: 01/01/2011
Posts: 121

Hello Gladys

What my colleague meant was to ask your consultant to consider putting you on a preservative free drop, obviously one that would lower the IOP (intraocular pressure) within your eyes.   There are a number of p/f drops out there.  Within the group you are on (Prostaglandin), there is Saflutan (this comes in a single dose phial.  Travatan (not p/f) but has recently had a change in the preservative and it is reported to be more gentle on the cornea.  There will no doubt, still be some side effects, but not as bad as the previous preservative that was in these drops.

Hope this helps?

21 April 2011, 21:33 PM › Go to Reply Form
ragamuffin54
Joined: 01/01/2011
Posts: 8

Hi

I think I'm experiencing one of the rarer side effects of Xalacom which is an itchy rash, although this has coincided with the warm weather so it could be I have been badly bitten by insects.  However, no one else in my family has been bitten and the groups of red itchy spots are appearing at regular intervals throughout the day and night.  As it is the Easter break with no hope of seeing a nurse or doctor at my eye clinic I am in a dilemma about continuing with my eyedrops because four days is a long time to wait to see someone and I don't want to send my eye pressures sky high by not using them.  Does anyone have any suggestions?  The advice on the leaflet is to stop using the drops immediately for this symptom.

22 April 2011, 1:02 AM › Go to Reply Form
Bailey
Joined: 01/01/2011
Posts: 223

Hi,

Could it be the Timolol (beta blocker) side of the Xalacom that is causing you problems?  Maybe your doctor could put you on Xalatan only for a few days, this would be better than nothing, but you should speak to your doctor, or go to emergency eye clinic at your local hospital, don't let your pressures go up.

22 April 2011, 19:16 PM › Go to Reply Form
ragamuffin54
Joined: 01/01/2011
Posts: 8

Hi Bailey

I was on Betaxolol for about six years prior to the Xalacom but that stopped working so I was put on Xalacom two months ago.  I have a spare Betaxolol, do you think I could take this until I see the doctor tomorrow, being the Easter break my own doctor's surgery is closed until Tuesday but I have got an appointment at the Walk In Clinic tomorrow morning where I hope they can diagnose the spots.  I think I have actually got chickenpox as I have researched on the internet and the symptoms also fit in with that.  It does say on the Xalacom side effects that no one has actually reported coming out in a reash for that medication but some of the ingredients are used in other eye drops and instances have been reported for those, so it looks like I would have to be really unlucky to be the first one to get a rash.

22 April 2011, 21:41 PM › Go to Reply Form
Bailey
Joined: 01/01/2011
Posts: 223

Hi,

Tricky question, I can't really tell you what to do except that some drops are better than nothing.  If you think you have chickenpox, then I would carry on with the Xalacom.  Can you ring your NHS direct number now.  If you phone your normal doctors surgery number, it should automatically go over to an emergency phone line where they will ring you back and advise you what to do. 

Hope you are ok,

Bailey x 

25 April 2011, 17:33 PM › Go to Reply Form
ragamuffin54
Joined: 01/01/2011
Posts: 8

Hi Bailey

just to let you know that I went to the Walk In Centre on Saturday and saw nurse, who said it was definitely chickenpox from the way I described the spots coming in crops over two days and that I had got a really mild dose.  However, as the symptoms of the allergy are very similar (very itchy rash) to chickenpox symptoms have gone back to Betaxalol just until the rash clears, then will resume taking Xalacom and if rash reappears will know I am allergic, if it doesn't will carry on using Xalacom.  Hopefully will only have to wait a couple of weeks for the rash to clear which it is starting to do already.

Thanks for your much appreciated advice it has helped me make a decision, I am fairly hopeful that two weeks off Xalacom won't make a difference and that the Betaxalol will offer some protection, albeit not the 100% I should be getting.

10 May 2011, 14:44 PM › Go to Reply Form
1penny
Joined: 01/01/2011
Posts: 2

I really find it odd that no one here ever seems to have been told to take the eyedrops that I have been given.  Ganfort is the name of the drops I take once a day before I go to sleep at night.  Something that I have noticed is that my eye pressure rises if I eat salty things.  I love salty things.  The last check up visit I had,  the pressure was 13,  which pleased everyone and I was told that I need not have an operation.  I was so pleased I forgot to ask what operation he had in mind!.

  I perservered with the drops for several months all the while enduring a nasty period of really sore, achy, blurry eyes.  However, now the drops do not seem to bother me.  I think that the pressure thing is the luck of the draw on the day you have it tested, or that is what seems to be the case with me.

  Whereas at the beginning of my diagnosis I was pretty bug eyed with horror at the idea of glaucoma, I now pay no attention to the condition.  It is what it is so I have no option but to do what I am told which is to take the drops regularly.  Cortisone is well known to aggravate and even instigate glaucoma.  My husband had/has polymyalgia rheumatica for over a year,  PMR is a nasty long lasting virus and cortisone is the only treatment that gives pain relief but it is not a cure,  only a pain reliever.  He has recently been diagnosed with eye pressure but fortunately the PMR virus is getting better so he is reducing his prednisone little by little which hopefully will reduce his eye pressure as well.. 

Cheers to all fellow sufferers.  Everyday should bring us closer to a cure.

 

16 May 2011, 17:02 PM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 135

Hello, Had a trab and needling on the left eye March 2010. August 2010 pressure in left eye 11 right 15,  right eye only using Brinzolamide (Azopt) 1drop twice a day. Latanoprost (Xalatan) 1drop at night. was prescribed Brimonidine Tartrate 1drop twice a day to right eye, this latest drop made my eye sore and stung when used,during March a sore dermatitus type sore developed at the side of my nose which got worse until I stoped the Brimonidine. Next appointment in August and loath to start the lastest drop again does anyone have any advice please? Lavengro.

 

22 May 2011, 9:39 AM › Go to Reply Form
Cardinal
Joined: 23/02/2011
Posts: 68
I use Travatan each night.  It's supposed to be less toxic than Lumigan.  We all seem to use different things so it's hard to know what's good and what's not so.
04 June 2011, 21:27 PM › Go to Reply Form
suew31
Joined: 04/06/2011
Posts: 1
I am having severe side effects with my drops, xlatan. I have really itchy skin which resulted in a sever rash all over my body. Have now changed to preservative free travatan. Fingers crossed to see what happens. It's been a total nightmare.
12 June 2011, 14:10 PM › Go to Reply Form
Cardinal
Joined: 23/02/2011
Posts: 68
I've had to stop using Travatan as I got ringing in my ears and a bad, chesty cough.  Has anyone else had these side effects?    My consultant has told me to use no drops for 2 weeks to see whether things get better.  

My pressures have only come down from 20 to 17 in 6b months.  This doesn't seem to be much progress.  My consultant is talking about laser treatment.  What's the difference between a treb and laser treatment?

Advice would be much appreciated.  I don't have any friends with glaucoma so no-one to ask and share experiences and concerns with.
13 June 2011, 12:36 PM › Go to Reply Form
Bailey
Joined: 01/01/2011
Posts: 223

Hi Cardinal,

17 seems a good pressure, & 20 is only borderline, or have you got normal tension glaucoma, which is the only reason I can think of why they would want to do laser or trab at this stage?

Laser is quite a quick procedure, & your consultant could probably do that there & then for you without too much downtime.  A trabeculectomy, or trab, is a more complicated operation, which requires a surgeon to form a small pathway in the eye for the fluid to drain & lower the pressure, usually a bleb forms which I think is like a scar tissue, & you will have to go back for a probable further minor treatment for the bleb.  I haven't had either of these procedures, but a lot of people on this site have & they can tell you in more detail about them.

Travatan is a mixture of beta blocker & prostaglandin, which can make asthma worse, or in your case irritate your chest & breathing, so maybe your consultant thinks an op will be better for you.  Generally, they don't do trabs, until they've tried a variety of drops, or laser.  I know I am facing this decision soon as well, let me know how you get on.

Bailey x

18 June 2011, 8:21 AM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 135
Hello. Saw my consultant yesterday he recommended stopping the Xalatan for Lumigan 0.3mg. one drop at night for my right eye, unfortunately pressure in the right 17 which is the highest for seven years. Left eye with the trab 9 which is brilliant. I return in 5 weeks. Lavengro.
28 June 2011, 16:30 PM › Go to Reply Form
Cardinal
Joined: 23/02/2011
Posts: 68
Thanks Bailey.  I think I have normal pressure glaucoma.  Am back on Lumigan 0.1 until my appointment at the end of July.  .  I'll explore what laser treatment is before I go next.  I see my consultant privately and he has only just got this laser so I need to reassure myself it's entirely necessary at this stage rather than a fee-making opportunity for him!
29 June 2011, 6:56 AM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 135

Hello, I have asthma so the consultant said he would not prescribe a beta-blocker, my trab was done because I was losing the sight of my left eye, by my judgement about 50% is lost, the doctor at the NSH told me the risks outweighted the benifites to the receptionist credit when I told her of my concern she booked an appointment with the consultant I waited six months to be told he reccommended a trab, I had this done privately as he could not guarantee doing the trab himself one month later it was needled, the eye has settled now pressure 9. I would like to continue with drops on the right but I know I may need a trab on the left eye in the future. We need a good consultant in whom we can trust our eyesight.

Lazer was never mentioned to me!

Good Luck everyone. Lavengro.

05 July 2011, 23:53 PM › Go to Reply Form
timwinking
Joined: 05/07/2011
Posts: 1
I take Alphagan 3 times a day, Timolol 2 times a day and Travatan once a day in both eyes, for over a year now. I had various issues with swollen eyelids, the area under my eyes turning red, being crusty and peeling and red eyes.

I now go through a ritual of washing my closed eyes with tap water and then applying Vaseline to my closed eyes and the area under my eyes before applying the drops. After putting the drops in, I tilt my head to look down at my feet and keep my eyes closed for two minutes. Then I wash my closed eyes with tap water and then wipe the Vaseline off with a tissue.

I originally used the punctal occlusion technique of using my fingers to push against the corner of my eyes closest to the nose but found that the drops would leak down my finger. My IOP using the looking-down-closed-eye stayed the same and seems more sanitary.

My eyes are still red but all of the other side effects are gone. I am still working on fixing the red.

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