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Glaucoma and Inversion tables

03 October 2011, 10:45 AM › Go to Reply Form
pedropete
Joined: 03/10/2011
Posts: 0

Good morning, I have Glaucoma and have recently developed a back problem.

I have been told that an Inversion Table would help, but have just read that this may cause a problem with my Glaucoma, what do you think?

Many thanks

Pete

04 October 2011, 0:21 AM › Go to Reply Form
Bailey
Joined: 01/01/2011
Posts: 234

Glaucoma

  • Cure-back-pain.org states that people with glaucoma feel negative effects from inversion therapy, since it obstructs the flow of fluids that circulate in the eyes, causing pressure on the optic nerves.


Read more: Negative Effects of Inversion Therapy | eHow.com http://www.ehow.com/facts_5021764_negative-effects-inversion-therapy.html#ixzz1ZlPIMYJC

I think the reason the inversion table may not be a good idea is because you need to go upside-down, & this is a definite no-no in glaucoma, anything 'head upside down' puts pressure on the optic nerve in glaucoma patients, we are also advised not to do yoga for this reason.
Bailey.
04 October 2011, 13:41 PM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 141

Hello, an update on my experience. Saw my consultant yesterday, left eye with trab pressure 8, when I mentioned sight slighty worse and at my visit to the optician in August was told it was magnacular the consulatant said the worsening sight was not due to glaucoma??? The optician had covered the right eye then shown me a graph, using the left there are black lines diagonaly across the page??? consultant said this happens sometimes. The left eye is constantly watering so he did stringe the tear ducks and this morning it does seem a little better.

 Right eye pressure 16 there is some damage but this is my seeing eye, optician said vision 20/20. Consultant wants to do a trab before condition worsens when I ask about SLT he said this was to replace eye drops and anyway they did not have the £50.000 machine in the large city in which I live, nearest 50 miles away. I'm reluctant to have another operation so he has changed Lumigan to timotol, ( wrong spelling) for a months trial. Looking at the side effects of the drops it seems to be trial and error. Hope everyone else is not as confused as me, Regards, Lavengro.

04 October 2011, 19:04 PM › Go to Reply Form
jankin
Joined: 07/05/2011
Posts: 75
So so sorry about drops etc - I have always been confused some med profs prescribe some others denigrate the effects.
What has happened to Pilogel - NO ONE KNOWS even the docs. I,m suppose to use it at night before Xalatan.
Asthma not too good right now so I,m off but not before sending you empathy and sympathy.
Trial and error!!!! Too right.
04 October 2011, 20:03 PM › Go to Reply Form
Bailey
Joined: 01/01/2011
Posts: 234
Hi All,
Lavengro what did he mean by magnacular? Did he mean macular degeneration? If so, did he test you with an Amsler Grid? Honestly, these people are so vague in explaining things properly to us.  I also have a watery left eye, which is very bad when I eat dinner, sometimes it's embarrassing when I go out for a meal, people think I've got something in my eye! I didn't realise something could be done about that, what did he do to your tear duct, did he make it bigger? I may ask my consultant about that next time I go.
As you say, your pressures are quite good, mine are 18, but my doc seems ok with that, as it is the same as when he checked it 7 months ago, & although left eye nerve is a bit damaged, it's apparently no worse, so I am happy with that for now.
Jankin, I wonder if Pilogel is going under a different name now? I'll ask my sister who works in medical pharma industry, or maybe I may find something about it on t'internet.  Sorry about your asthma, I hope you feel better soon, & the stress of glaucoma doesn't help, does it.
Bailey x
05 October 2011, 18:40 PM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 141

Hello, Both said just macular ( my poor spelling) I do not know what am Amsler test is. The optician showed me a graph/grid, a card with squares when the good right eye is covered using the left there are black lines diagonaly across the card.The consultant syringed salt water through the tear duck which I felt go down the back of my throat early days but it does feel a bit better. For good measure I also have cataract but they are not a problem at the moment.I also have asthma which has been greatly improved using Formoterol. Bye Lavengro.

 

08 October 2011, 8:09 AM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 141
Hi, thank you Bailey, I have googled Amsler test and that is what the opticial showed to me. When I have tried the test on-line using my left eye there are 3 black/blank stripes diagonaly across the grid, no wavy lines.  Should this be age related why are tests not routinely done for OAPs seems there is no cure, good diet and supplements are reccommended. Lavengro.
09 October 2011, 20:40 PM › Go to Reply Form
jankin
Joined: 07/05/2011
Posts: 75
I have been so ill with asthma and for the first time decided to check Xalatan.s effects - it would seem that these drops are making me worse - having to take prednisolone to breath and so moving in ever decereasing circles towards sight loss. I have tried 2 nights without when I did not not suffer and have now decided to cut them out altogether as the past week has been a misery in which I was able only to lay in bed and try to breath.
09 October 2011, 22:50 PM › Go to Reply Form
optimist
Joined: 01/01/2011
Posts: 54

Hello Jankin

If you feel it is the Xalatan making your asthma worse - it sounds that way if you were better when not taking it - you do need to speak to someone about changing it. I don't know which way they do it at your hospital if you can phone the eye department directly and explain the problem and ask for a quick appointment or if, like mine, you see your own GP and they contact the hospital and ask for the appointment. I would suggest you do this tomorrow if you have already stopped the drops. Hope you get some help.

Best wishes.

10 October 2011, 11:07 AM › Go to Reply Form
jankin
Joined: 07/05/2011
Posts: 75
Thank you for advice unfortunately I have no NHS Eye Clinic available to me at present as my NHS status was taken from me because I had seen a private consultant.
I am also taking Iopidine and pilocarpine twice a day.  My respiratory system has cleared up since I stopped the Xalatan and dont want to take steroids again which is what will happen if I see my GP. I will try and contact my private consultant today.
I`m caught in a trap.
10 October 2011, 11:13 AM › Go to Reply Form
jankin
Joined: 07/05/2011
Posts: 75
Just tried to get hold of the private consultant and told that she is away until 12th December!
10 October 2011, 14:25 PM › Go to Reply Form
optimist
Joined: 01/01/2011
Posts: 54

She is away a long time! I would ring sightline and explain the situation and see what advice they can give. You are taking other drops as well so they should be lowering the pressure as well. If at all possible you don't want to have to continue with the Xalatan and make your asthma worse.

Best of luck.

11 October 2011, 7:05 AM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 141
Hello Jankin, I too have been an asthmatic for 30 years which has been greatly improved recently by Formoterol Easyhaler morning and night. This year I was prescribed Brimonidine Tartrate which cause a skin reaction along my nose then Lumigan which was better but the eyelid became inflamed. changed to Azopt and Timolol morning and night. Timolol is kinder to my eye although it has affected the asthma slightly my next apppointment is early November so all depends upon pressures. Do you have an emergency eye clinic at your local hospital? Regards to all. Lavengro. 
11 October 2011, 23:56 PM › Go to Reply Form
Bailey
Joined: 01/01/2011
Posts: 234
I tried Formoterol, but it made me tremble very badly for 24 hours, every time I used it, so back to square one, I refuse to take steroids now, even when my breathing is bad.
18 October 2011, 0:27 AM › Go to Reply Form
Chrisc
Joined: 01/01/2011
Posts: 27
Hi everyone, I just went to see a specialist at Moorefield's today. My Brother  paid for it but to be honest I think it was a waste of money because although the specialist was very good he wants me to go back and see him and I can't afford it myself. At the moment I am not on any drops and feel very well. I was on Xalatan originally, this gave me a flu type illness for about 5 weeks and then left me chesty. About 9 weeks ago my consultant said it wasn't working and put me on Duo Trav and this made me bloat out and made my chest very painful - I tried to stay with if for 5 weeks but the pain in my chest was unbearable. I saw my GP and he said I had bad asthma ( I didn't realise it hurt so much) and took me off Duo Trav and back on Xalatan as he said it was better than nothing. Meanwhile he wrote to my consultant for advice and asked me to call the consultant in 3 weeks if I didn't hear. I didn't hear so called and they had not received the letter. So I had to arrange to have the letter faxed over. This was 3 days before my lovely holiday in Devon. Coming home from my holiday I was disappointed not to have a letter from my consultant explaining what drops I should be having so will have to chase again tomorrow. Meanwhile, my Brother had arranged for me to go to Moorefield's today and I saw a very nice man who said that my sight is very damaged by glaucoma. He said that my sight in my right eye was beginning to be lost and was worrying because it is in the same part of the visual field I have lost in my left ad if it gets worse it will have a negative effect on my ability to be independent. I think he meant that I would be considered partially sighted. He also said that I had kidney damage and that he would write to my GP about it. He said I would need to have an operation on my left eye soon and probably on my right eye in the future and he prescribed some new drops for me but as I said above I can't afford to get them so will have to see what my consultant has decided. I am hoping he will want to put me on the same drops. He said my eye pressures are high.
I feel sad though. He made me an appointment for 5 weeks time which I will cancel tomorrow. I don't want to lose being able to have NHS because my Brother was trying to be kind and was worried about me. Just can't afford it.
All it really confirmed to me was that my eyesight is being chipped away bit by bit, day by day, that my eye pressures are up and I need some eye drops that work but my NHS consultant is so overrun by work that he doesn't have time to see me or write to me and change my drops -  I have been without effective eye drops now for 4 weeks.
I think I have about as much chance of keeping quality sight as I have of winning the Lottery ! HUH.
One day I hope to have something positive to say about this situation. I feel awful moaning but am so pleased that I have somewhere to vent my feelings to people who understand and also I am concerned about the problems you all are having too. I am just at a loss to try and help anyone. My most positive post was I think to say that Xalatan only gave me flu for 5 weeks and then just made me chesty.....:)
Best wishes everyone. X
18 October 2011, 7:35 AM › Go to Reply Form
Lavengro
Joined: 01/01/2011
Posts: 141
Hello Chrisc, I see a private consulatant when he gives me a private prescription I take it to my health center where my doctor gives me a NHS prescription. Glaucoma is a permanent condition and by going private we save the NHS money so there is no reason why the drops a private consultant recomends cannot be given by your GP, the private doctor writes to your GP with his findings? I should add we are retired and the cost is a struggle but I consider it a price worth paying should I need to tranfere back to NHS judging by the experience of Jankin it may be interesting!!! Lavengro.
18 October 2011, 12:09 PM › Go to Reply Form
Chrisc
Joined: 01/01/2011
Posts: 27
Hello Lavengro, I was feeling worried yesterday about getting the drops prescribed by Moorefield's from my GP so this morning I called the NHS consultant's office to see if there was any news yet regarding his view about what drops I should be taking - it has been about 5 weeks since I stopped taking what he prescribed for me and his secretary still couldn't find the letter that my GP resent via fax two weeks ago (the original was lost). She said she would check with her colleagues to see if they had seen anything and I should call again in 2 or 3 days time. I was then too late to get an appointment at my GP so will hang on a couple more days. I haven't cancelled my appointment with the private clinic yet, the cost of that consultation will be £150 and I can probably just about cover that. But what I am really worried about was that he said I need an operation and I know I can't cover that at all so it seems a bit pointless really. I also wonder if the service from the NHS is so bad because they are trying to force people to go private. To be honest with you I just don't know what to do for the best.
19 October 2011, 19:25 PM › Go to Reply Form
jankin
Joined: 07/05/2011
Posts: 75
Joined: 07/05/2011
Posts: 36
Hi Chrisc I have copied this to 3 topics as it seems to sit in all hope you find it helpful
Jankin
Dear John Sumner - your response sounds very much as though we have an integrated, professional, reponsible  NHS system to represent us.
If you read all the comments on this Forum you will find that this is not so.  Simple measures would satisfy `our needs` i.e. relegating one consultant for us to contact, sensitivity and expertise in our treatment including clear instructions on the prescription and use of drugs ALSO knowledge on behalf of the consultant and his or her team that they need to treat a glaucoma patient holisitically  ie taking into account other medical conditions that they may have. Plus plus plus real and prompt communication from consultants to GPs about glaucoma treatment - some GPs (and I do mean this) have no idea that eye drops affect us  systemically. 
Glaucoma sufferers need to know that we are getting the best treatment possible not the haphazard  and often risky treatment that is doled out to us at present.
WE do know, without a doubt,  that we are being pushed off the NHS service into private medicine and the med. proffs. inclusing administrators need to take on board that most of us cannot afford this route and will be likely to lose our sight because of the dreadful state of affairs - I say this because of the tone and content of your response which I find disingenuous in the extreme.
Jankin
20 October 2011, 7:21 AM › Go to Reply Form
LUCY
Joined: 01/01/2011
Posts: 30

Well said Jankin. I could not agree with you more. I am  for the time being able to go to a Consultant Surgeon privately. After the treatment  I received at my local NHS hosptial was Shambolic to say the least, I work in the nhs myself and was totally disgusted with the way I was treated at my first appointment.  I have much better treatment now Surgery and hope for the future. ....After paying into the nhs for over 40 years I am totally disgusted at what seems to be totally uncaring professionals regarding Glaucoma patients.

 

LUCY   

20 October 2011, 18:47 PM › Go to Reply Form
Chrisc
Joined: 01/01/2011
Posts: 27
Thank you Jankin, that is exactly to the point. I actually got a call from my consultants secretary today to tell me that he has changed my drops and she has let my surgery know. I had already booked an appointment to see my GP and took along my drops from the private consultant (she completely disregarded my comment to her that I had gone private because I had been waiting 5 weeks for the NHS consultant to change my medication). She said I was not to use the drops from Moorfields but to use the drops prescribed by the NHS consultant. Originally I had to stop the ones prescribed because the drops contained a beta blocker and made my chest very bad. When I picked up the new drops and checked the leaflet guess what. They are Xalacom and contain a beta blocker...............

The private consultant said he strongly believed I suffer with sleep apnoea and that my optic nerve is being starved of oxygen. I told her this and she said that I needed to lose weight before she would consider referring me to a sleep clinic. I put on 15 pounds while on Duo Trav because they made me feel so ill I couldn't take any exercise for 5 weeks....the fact that I was not overweight when my sight started to go went over her head....

Would it really be so difficult for the NHS to provide a service for glaucoma sufferer's whereby when we are prescribed drugs that are KNOWN to cause side effects to tell us that we can call the 'glaucoma clinic' if we experience difficulties in order to get our meds changed there and then on the spot....rather than to put us through the sort of hell I (and I know many others) have to go through just to get medicine changed.

God help us because the NHS certainly won't.
21 October 2011, 8:02 AM › Go to Reply Form
optimist
Joined: 01/01/2011
Posts: 54

Hello Chrisc.

Sorry to hear you are is this situation. What were the drops that the Moorfields doctor prescribed; would they have been better for your breathing? Also what was it about you that made them think you had sleep apnoea? Do hope that the Duo trav do not have the same side effects on you as the others.

Best wishes.

23 October 2011, 12:10 PM › Go to Reply Form
Chrisc
Joined: 01/01/2011
Posts: 27
Hi Optimist, Moorfield's prescribed me Lumigan and Travatan. I used them for 3 days before changing to Xalacom. Not sure if there was an improvement in my breathing during that time. I have only been taking the Xalacom for 3 days now and I have some heavyness in my chest but I will see how it goes. I am not sure why Moorfields thought I have sleep apnea. He asked if I snore and I don't much. I think it may be because my sight is going quite quickly, I lost some more in my left eye in May and he said I was starting to lose some in my right eye which I am sure wasn't the case in August when I saw the NHS. He also said he believes I have problems with my kidneys, again I am not sure how he can tell. I should have asked but there was so much going on. My hands and ankles are still very puffy from taking the Duo Trav which bloated me right up, so maybe that it why he thinks my kidneys are being affected. I think my problem is that I feel it is all very urgent and it's stressing me out. Maybe for them it's just an inevitable waiting game to see what happens. I know one thing, if the drops make me feel to ill to go to work then I am going to have to stop taking them. I keep trying to explain to any medical person available that I will lose my job if I can't do it because I feel ill but they don't seem to understand. They just say, 'If you don't take the drops you will go blind.'
Thanks for your interest,

Best wishes.

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